Wednesday, October 28, 2009
Snowy Day!
We woke up to a dusting of snow that later turned into bonafide snow showers! We started early this morning with feeding therapy. Her tongue thrust is still stubborn. It is so obstinate that her therapist is considering trying to send her to the "tongue thrust guru". The thrust is an issue because it interferes with eating properly. She is swallowing things without chewing or chewing enough which is bad for your esophagus and makes your digestive tract have to work harder to process and break the food down. It doesn't help that she has been sick and off of her food/drink, tubing the formula just enables her to avoid eating which she seems perfectly happy to do.
After therapy we hightailed it to the hospital on post for her nutrition appointment. I left my phone at home so didn't receive the phone call from her dietitian asking if we could come in early. It was a good thing that it was a flexible request. I need a phone that yells before I walk out of the door so I don't forget it. The good news is that she is GAINING WEIGHT! She is 31.2 lbs, so tweaking the formula worked! We are going to leave things the way they are for the time being. If she continues to gain weight too rapidly, we would have to adjust the formula again to make it less calorie dense. We've never had to do that before! Normally the suggested weight gain for a girl her age is 5 grams per day. Since our last visit with the dietitian Mia gained 34 grams per day! She isn't too worried about it, thinking that her body needs to play catch up anyway. She hasn't gained more than 31 in the past week, so she's not steamrolling out of control.
After we were finished with the nutrition appointment we went home to gather her school things and boogied off to preschool. It was still snowing, but the wind had developed quite a nip. When we take the kids to preschool, they have us wait out at the playground. The area that we eventually go into is a commons, so I'm not sure why they have us stand in the cold with our cheeks freezing solid. They open the door at 1230 sharp, but I wish they would make an exception on very cold or very rainy days. It was so cold that they kept them inside for recess, Mia said. I let her run around outside when we got home, just enough that she got some good snowballs in with the boys next door!
Warming up after playing in the snow. Boxes are a favorite perch.
Trying to keep up with three older boys is tough work!
He's showing her how to pack a snowball
After therapy we hightailed it to the hospital on post for her nutrition appointment. I left my phone at home so didn't receive the phone call from her dietitian asking if we could come in early. It was a good thing that it was a flexible request. I need a phone that yells before I walk out of the door so I don't forget it. The good news is that she is GAINING WEIGHT! She is 31.2 lbs, so tweaking the formula worked! We are going to leave things the way they are for the time being. If she continues to gain weight too rapidly, we would have to adjust the formula again to make it less calorie dense. We've never had to do that before! Normally the suggested weight gain for a girl her age is 5 grams per day. Since our last visit with the dietitian Mia gained 34 grams per day! She isn't too worried about it, thinking that her body needs to play catch up anyway. She hasn't gained more than 31 in the past week, so she's not steamrolling out of control.
After we were finished with the nutrition appointment we went home to gather her school things and boogied off to preschool. It was still snowing, but the wind had developed quite a nip. When we take the kids to preschool, they have us wait out at the playground. The area that we eventually go into is a commons, so I'm not sure why they have us stand in the cold with our cheeks freezing solid. They open the door at 1230 sharp, but I wish they would make an exception on very cold or very rainy days. It was so cold that they kept them inside for recess, Mia said. I let her run around outside when we got home, just enough that she got some good snowballs in with the boys next door!
Warming up after playing in the snow. Boxes are a favorite perch.
Trying to keep up with three older boys is tough work!
He's showing her how to pack a snowball
Tuesday, October 27, 2009
A few older photos popped up...
Mia seems to be on the mend! Her fever finally broke on Saturday morning but she was still feeling poorly. She perked up by Monday, looking a little pale and still battling the cough. She went back to school today (so did Mommy) and seemed to have a good day. She came home with a drawing of herself, we named her Mini Mia.
Feeling pooky on Saturday. She was sitting in front of the television watching a movie and when I came back in to check on her she was face down, asleep on the floor!
These next few are a couple of months old, they were hiding on my small camera!
Auntie Heather sent her flower girl dress early. We either have to have it altered or Mia has some serious weight to pack on!
Typical Morning Mia Hair
Daddy brought her birthday present home with him. They have a little market set up on the weekends at the base, many vendors sell their work and he found the prettiest little jewelery box. It has a flower carved on the lid and it's made of rosewood.
Playing with the ponies before ballet class
Our official gear inspector
I believe this was her first day of preschool at Patriot Elementary
Feeling pooky on Saturday. She was sitting in front of the television watching a movie and when I came back in to check on her she was face down, asleep on the floor!
These next few are a couple of months old, they were hiding on my small camera!
Auntie Heather sent her flower girl dress early. We either have to have it altered or Mia has some serious weight to pack on!
Typical Morning Mia Hair
Daddy brought her birthday present home with him. They have a little market set up on the weekends at the base, many vendors sell their work and he found the prettiest little jewelery box. It has a flower carved on the lid and it's made of rosewood.
Playing with the ponies before ballet class
Our official gear inspector
I believe this was her first day of preschool at Patriot Elementary
Saturday, October 24, 2009
A Princess Plays
We've had quite a week. Mia started acting like she was getting sick on Tuesday. Her energy was slightly lower than usual and she didn't want to get out of bed. By Wednesday evening she was running a fever so I kept her out of school for the rest of the week. The fever responds to Tylenol, but so does her gut so she had diarrhea on top of the fever, congestion and cough. The fever finally broke this morning, so maybe we're out of the woods. She stayed in bed all day yesterday and didn't come down until the evening. She refused to eat so I had to pump everything through her g-tube. I did call the nurses line and they pretty much said to keep doing what I'm doing since it is obviously the flu.
The unfortunate thing is that she sneezed in my face last night! I headed straight for the OJ and the Zicam and ate a bowl of veggies to make myself feel a little proactive! I doubt there is any way I'm going to avoid getting it. She got me squarely in the face!
The unfortunate thing is that she sneezed in my face last night! I headed straight for the OJ and the Zicam and ate a bowl of veggies to make myself feel a little proactive! I doubt there is any way I'm going to avoid getting it. She got me squarely in the face!
These were taken a couple of weeks ago. She still likes to wear her hula outfit.
Singing Three Blind Mice
Showing off her "puppy dog ears" that she made in preschool
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