Wednesday, January 28, 2009

Pharmacokinetics

Well, we survived our big day of testing. There really wasn't a lot to the process, you just had to stick around so you could get the blood draws timed just right. We started our day much earlier than either of us was used to. I got up at 3:30AM to make her formula and pack her cooler, load the car and get Mia ready. She was NOT happy about waking up. She kept saying "NO! I wanna stay in my bed!" Poor kid, comes from a long line of people who will never be accused of being morning people!

We were on the road by 5:00am, leaving much earlier than at the time I thought necessary since it had snowed the night before. I thought we'd beat the rush hour traffic, but I was very very wrong! If anyone offers me a choice in the future, I'm sticking with the late morning appointments! We needed to check in at 730 and we made it into the parking lot at 7:27, proving my instinct right once more. Between rush hour and the car accident that had the right two lanes on I-25 closed inside Denver proper, we wouldn't have had a chance if we left any later than we did. Phew!

We had our consultation with Dr. Spahn, a delightful man who LOVES numbers! He came in with a piece of paper that had a graph on it, much to my relief. I was afraid he was going to try to explain everything with no examples or pictures. I retain information MUCH better if I can see it happen in front of me. He explained why we do the blood draws before she is given the steroid (to get the base level of cortisol and eosinophils) and why we take the second so far apart (there are very specific levels they are expecting and if they are off, something is not right, both values are supposed to drastically decrease.). If this test shows abnormalities, we could be looking at either an adrenal or a metabolism problem. If it is normal, we still need to do another study. Either way we're going back sometime in the near future. He said that they only do about 160 of these studies per year, which would explain his enthusiasm for explaining the process as thoroughly as possible. Most of the subjects are adults, a few are kids and even fewer of the overall patients' primary complaint is GI disease. It's typically done on steroid resistant asthma patients, but could be useful in other areas, such as Mia's.

The worst part of the day was the first blood draw. They couldn't get a vein to cooperate anywhere and it didn't help that Mia was in full on defense mode. I have never heard her scream they way she did yesterday morning, it was very rhythmic and her eyes had this looked that said, "I've checked out, left you with this screaming version, see you later!" She wasn't hearing anything and nothing made her feel better until the nurses left the room. True to her nature, she did forgive them quickly once they showered her with stickers. We didn't use any kind of numbing cream the first time because we know what Emla does to her skin. They came in for round 2 with something called Lmx, a cream that would do the same thing but was somehow different. I said we'd try, just for the sake of trying after the earlier circus. Hallelujah it worked! She didn't have a bad reaction, just some redness but more importantly it made the chore of drawing her blood easier. Nobody likes to take blood from this kid, because her little veins are not cooperative! The last draw of the day was the best, I hydrated her like crazy an hour before hand and that helped. The nurse from the morning was feeling guilty so she took Mia back to the "big" prize closet and let mia choose something from a basket of goodies. We now have a strawberry shortcake jump rope. Don't ask, it's what she wanted!

The drive home was much quicker than the drive in. We left the hospital at 6pm on the dot, so most of the "Oh I have to be the traffic" traffic was gone. I don't particularly like driving in the dark but I found a caravan of sane people and we just mosied into Springs, getting us home a little before 7:30.

We should get a call in about a week regarding the results, I'm just hoping that everything happened the way it was supposed to happen, because I really do not want to do this all over again!

Sunday, January 25, 2009

Feeling MUCH better!

The nasty cold is finally on the way out! Friday was the worst of it, she was practically a rag doll sitting on the couch. She even asked to go to bed early. Saturday she slept in a little but was happier than the day before. She was chatty and engaging, a complete 180! Today she's still fighting the runny nose and cough but she's back to her little self. She insisted on wearing a dress that has a matching headband, sweating to the oldies style!

I guess the only upside of her being sick and stationary is that I'm getting some sewing done. My machine really needed that tune-up! I finished a shirt for her, a skirt for myself and now I'm working on a pair of pants to go with her shirt. She's growing so fast! I think we have about a month or two left in her shoes that she has now before I break out the next size up.

Saturday, playing with her bunny puppet


Today, spunky as ever and covered in paint!

Friday, January 23, 2009

Under the Weather

Well, my EGD didn't happen. Wednesday night Mia ran a high fever so I took her to the ER. It was a hoppin place that evening so we were there for about 3.5 hours. Her fever had dropped from 102.6 at the house (with a GOOD temporal thermometer!) to 101.5 at the hospital. I quickly realised that Mia's little cough and sniffle weren't as bad as the other kids in the room, hacking and coughing like old smokers. We were ultimately told that it was just a viral cold and nothing to be done but great for checking in since she is on Imuran. I had called the doctors office before we left because I knew there was no way I'd be able to let her go to preschool and no way was I going to get Helen and the family sick right now!
I let Helen know that we wouldn't be executing the awesome plan and we have been home ever since. Yesterday we did do a foray out to take my sewing machine to get a well overdue tune-up. It was squeaking and chirping during the last bit of the futon cover project so I knew it was time! She is feeling worse today, I believe. She didn't wake up until 930AM and wouldn't get out of bed until an hour after that, just laid there looking pitiful. We picked up the sewing machine and now she is lying on the couch watching Curious George. She felt so badly that she couldn't even mess with things in the sewing shop, just stayed limp on my shoulder.

It's so sad when a kid gets sick! You're used to some spunk and sass, and all you get is the stoned and wan look and the occasional, "Mamma, I have boogers. I need tissues."
Sure she's stationary and that means I should be able to get some stuff done, but I end up sitting and cuddling because that's what made me feel better when I was little and not feeling well.
I am prepared for my round, though. I am drinking Airborne like it's life juice and I bought a package of Zicam nose swabs for when I start to feel the first tingles of whatever this is. You always have to be a step ahead with kids!

Wednesday, January 21, 2009

Presto Change-O!

This futon couch has been around for a while. I think Mom and Dad bought it in 2000 for my new room in the house, so the cover has served a good almost 9 year run. I still very much enjoy the cover, with the oriental sketches of bugs and characters. While it didn't look terrible (at least I thought)it didn't exactly pull the living room together. Gary and I had both mentioned on different occasions that the cover needed to be replaced and the other night we were talking about using my old fabric scraps and his t-shirts. It sounded fun but when I thought about the big picture it seemed like a lot of extra work and something that would look even more staggering on the whole.
Now, I love fabric. I mean LOVE it. I see something terrific and buy several yards, then hoard it. I keep justifying it by saying I'm saving it for something really grand, but it sits in the fabric trunk unused for who knows how long. I've come to realise that nobody wins, so I decided to offer up the prize near half-bolt of fabric that is so shabby cottage chic.
After I finished, I was quite pleased with the transformation. The actual construction isn't an entire futon cover, rather a jacket that goes over the visible part. I didn't want to wait on a ginormous zipper and I decided that I didn't want to disassemble the old cover and salvage that one. I'm pleased, it's super easy to remove and the colors pick up the curtains and the prints on the wall. It's not so alarmingly frou frou that Gary will vomit on sight, a courtesy I kept in mind when going through my stash of fabrics.

Before

After

A closer look

Mia and I had to bow out of feeding therapy today. I woke up horrible nauseous and she has been coughing all night, so I decided that it would be best for the general public if we took a day of recuperation. She'll get a double dose of socializing tomorrow while I have my endoscopy done but she was sad about not seeing her therapist today. I think they really enjoy working with each other.

Last night we went to Helens for dinner and stayed for her Lia Sophia jewelry party. I had been to a Cookie Lee party before, but I think I like this line better. The construction seems pretty sound and their replacement policy seems fool-proof. Your toddler could put a necklace in a blender and all you'd have to do is send it to the company with the guarantee paper for a replacement. It was nice and I decided that I'd host one to help Helen out with her loot and to have something to do sometime in the next few months. Mia did great, she watched movies with Caden and Erin and didn't get grouchy until I took her out of the car at home. I didn't realise how late it was when we left and knew she'd fall asleep in the car which meant nothing but whining and crying once we arrived home. Oh well, sleep in the bed you make, right?

Friday, January 16, 2009

Today makes two weeks that Gary has been gone. We've kept busy during the day but notice the absence at night. Thank goodness for Netflix or I'd go bonkers!

Mia had her first experience with Afternoon Explorers at her nursery school. It's an afternoon program for people who need their child tended to for a few hours. I was worried that she'd get nervous after her classmates left and she had to fall in with a different group of kids but they said she transitioned very smoothly. When I went in to pick her up she gave me a look that said quite clearly, "Go back home, I'm having fun!"

We are going to utilize it again next week when I get to have an endoscopy procedure done. Fun! My first appt with the adult gastroenterologist was yesterday, and he said that my problems don't really sound like classic reflux. The funny thing is that he suggested Eosinophilic Gastroenteritis. Okay, that isn't really funny. It would be weird to be diagnosed with something that my daughter wa un-diagnosed with. Part of me doesn't think the EGD will show EE, but part of me is scared as all get out that it will. So, I'm to eat the foods that bother me, or eat as normally as possible so that if there are indeed rogue eosinophils, they will be present and accounted for. If they don't find anything, I'm throwing in the towel and asking for a good stress counselor.



Mia got a nice little surprise today. Her little friend Sam sent a late Christmas present. She has been walking around with this rabbit puppet since she opened the package! Sara gave me a very pretty necklace, and in a color that I've been attracted to lately!

Wednesday, January 7, 2009

No World Order

I wasn't thinking when I started uploading pictures, so they are quite out of order.
We dropped Gary off at Company last night and just received the call that he got to their training destination around noon. The Army has everyone validate by hosting a mock war at various training centers. He'll be gone for about a month, no idea how I'm going to open tough jars all by myself! Every time I handed one to him he would say, "I'm deployed, what are you going to do?" I told him, "Take it to Brian next door!"

We got some snow over the weekend, nearly six inches out here. The snowfall is wildly variable across Colorado Springs, even across post. A lady came to pick up a freecycle item on Sunday and said that up in the northern part where she lives they didn't get very much at all. The snow melts very quickly here so you have to act fast if you want to enjoy it. I strapped on my cross country skis that night and did about a mile and a half to two miles, not entirely sure. On Monday the snow was still around so Mia and I had breakfast and got ready for a little bit of snowshoeing. I wasn't sure the snow would be deep enough, but along the highway I was very glad I had them. I pulled Mia in the pulk behind me, letting her out when we were about half done with a four mile loop. She teetered through the snow for a little while before I had to put her back in when the path came close to the road. My body is still screaming at me!

The path along the highway



Hello old friends!

It's a Mia in a pulk!





Look Ma, no stability!

"I make a body print!"


A little Aquadoodle action

I think she has lived in this basket since Friday


Yes, we're still confused.

"Oh no! I crash BOOM! WRONG WAY! Daddy help!"

Warming up after sledding


Gary had to give Mia and Matthew a hand in the snow


Mommy's turn to ride with Mia

Friday, January 2, 2009

25 Candles, and no more please.


Seriously, no more candles. I'm concerned for the health of the people around me.
We went to Outback Steakhouse where I gorged on the bloomin onion, answere with a salad. We saw The Curious Case of Benjiman Button. For a movie that is nearly three hours long it is wonderful! I was concerned about the length, since we left Mia with his family but it went by fast. It is based on a short story by F. Scott Fitzgerald and very well done. We didn't look at the watch once and when it ended it was right. I hate it when I'm at a movie and I've seen four good endings by the time the movie actually rolls the credits. I don't like the feeling that the show will never stop. It's a tear-jerker though, be warned. From the start to the finish I was watery!

Christmas 2008

I do apologize for leaving December untouched as far as blogging goes, but I was a wee bit busy getting ready for the masses to descend upon our home. I barely finished gifts in time, blasted DIY pledge. I did it though, with minor adjustments made after people opened the gifts and tried them on.
The Dollmans arrived late on December 22nd and promptly hit the hay after the proper greetings were given. The next day brought the Sams side after lunch. We thought this house was nice and big when we moved in but it quickly proved to be smaller than we thought! Yvonne, Nicole and I went to the commissary before noon to do some shopping. I had no idea what would please everyone and I'm so glad I brought them along because I would have failed miserably. Not everyone lives on granola, I guess. The 23rd was the last minute dash for Circuit City and Target for stocking stuffers and Gary's Ipod. Every year I say I'm going to have it all done early and every year ends up with the same errands.
Helen and John were brave (or crazy) enough to invite everyone to their house for Christmas Eve dinner. We whipped up some appetizers, a pie and made a casserole to contribute to the feast. It was great, lots of food and a nice big ham (or two!) The kids really enjoyed having a mini Wii tourney in the downstairs room while the adults did their boring thing upstairs. It was nice to see everyone together.



Mia pulling the blanket off of Daniel

Morning with Grandma


Jessie, Mia and Mimmy

Lets do PopPop's hair
Smashing!

Daniel, Yvonne and Nicole at Helen and John's


Caden is such a ham!
I have no idea what Jessica was teaching Mia in this picture

Getting snuggles in while she can

Mia and Erin building...then demolishing
Mom and Aunt Susie

Having fun with the Wii




The Feast

Cheetah and Gary have a moment
Dad, Uncle Mark and Mom
They play so nicely! Mia and Erin with the magical pony
The Not-So-Kiddie Table














Christmas Day

Grandma reads a morning story before going down to discover the goodies

Jessie takes her downstairs


Going the wrong way!

Oooh, What's over here?
SCORE!
Mia's new dollhouse

Mia and Pinkie Pie have been inseparable ever since.



She thought the nesting snack boxes were great. They have neat illustrations of animals...or monsters. The jury is still out on that one.

The girl loves gift cards!

The cheeky shirt from Chris and Angie




Yvonne with the scrub shirt I made. It ended up being VERY over sized. I didn't realise how generous the pattern was. We took it in after the opening of gifts finished.

Apparently Jessica REALLY wanted a skirt made of ties!

Mia with her shirt that Chris and Angie gave her. Nobody got a picture of me with my hoodie!

Phyllis with her purse made from Nigerian fabric she purchased at one of their first overseas stations in the 60's or 70's. She gave it to me a couple of summers ago.
Opening the first part of what turned out to be a new CPU. 300gigs and dual boot baby!


Gary liked his Ipod nano. His is black, and the one I got on my birthday is purple. They are so cute together!
Looks like Santa had to get creative when he couldn't fit the Wii in my stocking!Hugs all around, starting with Mommy

One for Daniel
One for Jessie


One for Nicole

One for Grandma

One for Yvonne

One for Pop Pop


Pause to survey the damage

A hug for Mimmy
The whole family has a Wii experience

Jessie models the skirt in it's unfinished form. It's a bit shorter once I added the rest and realised I had to cut the waist to match the shortest tie!






Mia wallows in the loot













Jessica's 22nd Birthday!
We went to Carlos Miguels (our favorite place to eat)





I made fun of Yvonne and Phyllis for taking pictures of food, but this actually looked neat!






It's the type of place where they hand feed you Sopapilla on your birthday!


There were several attempts to visit Pikes Peak but the cog rail couldn't go past 12,ooo due to snow on the tracks and the next attempt was foiled because they arrived at the gate a half hour after they stop letting cars go up. Apparently you couldn't make it to the top that day anyway. I'm getting the impression that it's an attraction that is more suited for a summer visit.
Garden of the Gods is always open though!



Yvonne, Nicole and Daniel on the balcony of the visitors center







The Sams Clan






No idea where she learned to pose like this












You can't see the wind that is trying very hard to knock them down
The amazing balancing rock




















Mommy was sick on the 28th so Mimmy and PopPop took her to the playground while I slept. Mimmy was also feeling icky, what a trooper!

Sushie for my birthday...the chopstick nose pick!




Mommy and Mia at the salon



Gary took his family up to see Seven Falls lit up for the holidays. Mia and I stayed home with the Sams, since it was their last night in Colorado.


















The Broadmoore at Christmas


After another failed attempt at doing Pikes Peak, they went to the Cliff Dwellings


Mia tries to play the Jeep game. I'm not teaching this one how to drive.




Thats all folks!































































No idea why it leaves this much space. I feel like I'm wasting a chopped down virtual tree.