Things are still pretty much the same. Starting to see some of the old gastric issues again, unfortunately, but without the blood. She is more anemic than she was on 20 March where her CBC wasn't impressive, low in a lot of the red blood cells and twice as many platelets as is normal, low white blood cells and some other things I'm not familiar with yet. Apparently her hemoglobin is still dropping according to the latest CBC from Tuesday. They had us come to the Peds clinic yesterday so they could get a visual on her. For a severely anemic child she is extremely energetic. I think they were expecting a lethargic and sick looking girl, but here comes this little pig-tailed Queen of Almost Everything. She has been much more obstinate than usual, but I'm having a hard time interpreting whether it's the anemia or just being a toddler. She's normally a little testy, but lately she's been downright defiant. On one hand, it's age appropriate but on the other, she isn't normally like this. So I'm left with looking for the classic signs of severe anemia.
We've started a new medicine, Carnitor to bring up her L-Carnitine. It was very low on her micro nutrient panel, along with the zinc and iron. She'll receive an iron infusion with her last IVIG infusion on 2 May. We decided to get one more since we'll likely be on the road soon after that. The extra boost for her immune system wouldn't hurt since we are going to be coming in contact with who knows what at every rest stop and motel along the way...*shudder*
In the meantime, we are trying to get a list together to streamline the packing out process. We are considering at half DIY move. We've heard that they are moving so many people out of AK right now that they are having many families do their own move with an allowance. The first shipment of "unaccompanied baggage" is usually fairly small, full of things that you need quickly or to keep you until the rest of your things get there. We might just pull a trailer with that instead of having a company do it. We may even be able to fit it into the Suby but it would leave absolutely NO room and completely zero out the safety factor. It mainly depends on where we go.
Anyway, this picture is from the weekend of Easter, I believe. We've been so busy lately that we haven't even taken pictures.
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