The anemia has worsened, according to this morning's CBC, so we got the call today that a blood transfusion will be the best option right now. Simply putting more iron into her will not work at this point. Her pediatrician spoke to the allergist and everyone is in unanimous agreement that this should be done before she gets worse. Today was a little rougher than before, her resting periods between spurts of playtime are getting longer and she keeps saying things like she doesn't feel good or has a headache. These things worry me because we have never made a big deal out of her everyday discomfort/pain or not feeling well. I've always heard that the worst thing you can do for chronic pain or illness is to draw attention to it. We don't ignore it, but we move along without creating even mild hysteria. Attention is directed towards her accomplishments and positive behaviors so when she is negative, something is off kilter.
The transfusion will be this week. The nurse's best guess was Wednesday or Thursday because even though it isn't an outright emergency, it should be done quickly. We're worried, even though the standards for blood donation are pretty strict and they are even more attentive towards the smaller patients. Unfortunately our options are transfusion or watch her get sicker. Those are some apples.
2 comments:
i just read the last post- i am curious to know what her blood count numbers are, like the hemoglobin and hematocrit. i know the thought of blood transfusions are scary- especially with mia. if it is of any help-i give transfusions all the time, and i have rarely ever seen a reaction or complication to getting blood in the 10+ yrs of being a nurse. it is very safe- they run so many tests to match it with her..anyway- i hope it goes well and that it will help her feel better. you guys have so much on your plate-i hope things will go smoothly.
How did it go? Little Mia is in my prayers.
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